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RA Will Change Your Life. It Doesn’t Have to Ruin It.

A blue street sign says Follow Your Dreams

Does rheumatoid arthritis mean you have to scuttle your dreams for the future? I think you know my short answer to this, but… let’s dive into the details in my new column for HealthCentral:

“When I was a little girl, I had high-flying dreams and they had very little to do with my juvenile arthritis, a childhood illness similar to rheumatoid arthritis (RA).

First, I wanted to be a ballerina and practiced dance moves on my parents’ Persian rug. Then I watched Jacques Cousteau and his crew of marine biologists diving in waters all over the world and scuttled the dancing dream in favor of serving on his ship, the Calypso, and spending much of my life under water.

But at age 16, I went home after a two-year hospital stay in a power wheelchair, trailing recommendations from my then-medical team to lower my expectations of life to those resembling a turnip’s. Because of the disease, y’know.

It would be easy to dismiss this as a function of attitudes in a land and time far away from now. But these perceptions persist, if not in others, then certainly in ourselves. It’s a strange thing, this shift in assumption and expectation. The minute you get a diagnosis of chronic illness, it’s as if the rug is pulled out from under you. Your future, which had just shone with possibility, now seems dull, hopeless, and framed in less-than.

Do you really have to give it all up and accept a life of sitting on the sidelines? No. Not by a long shot. The key is to adapt and change your approach. But more on that in a bit. First, let’s take a look at the obstacles.”

Read the rest of my column on following your dreams with RA on HealthCentral.

 

 

1 Comment

  1. Rick Phillips on November 25, 2020 at 8:57 pm

    My come to dream moment came when I was 17 and it was clear I was not going to be able to go to a boy scout summer program to be a staff person in 1975. I went in 1974 shortly after diagnosis with diabetes. i stayed over 30 days and for the second year in a worm I loved it.

    But Just the same, I knew in 1974, i could not be invited back. I knew I woudl always love the place in New Mexico and yet I knew I could never be invited back. Taking insulin and that activity was not compatible for an entire summer. It was an obstacle I could never overcome.

    Just the same I knew I was no defeated, I had taken it as far as possible. That sort of gave me a new way to think of things. Had I taken it as far as I could? If I had I was OK. If not, well that was different. there have been very few things I have not figured out in that context

    Did I take it as far as I could? Meaning also have i gone as far as I want? there have been very few things I have not taken as far as i wanted and many many fewer, that I cold not take as far as i wanted.