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What to Do When Your Doc Dismisses Your RA Pain

More than ever, it’s important that you and your doctor agree on pain management. In my new call for HealthCentral, I discuss self-advocacy tools that can help you communicate your pain with your doctor to get you feeling better faster:

“IT’S ALL IN your head.”

Although a doctor may not say those exact words, many people in the rheumatoid arthritis (RA) community have walked away from an encounter with a doctor feeling dismissed. Maybe you were told that aches and pains were a normal part of aging. Perhaps someone suggested that your report of pain was exaggerated—the term “catastrophizing” is often used in the context of chronic pain, meaning that your response is seen as dysfunctional and overly fixated. You may even have been treated as a drug seeker when asking for help with your pain. Some call it medical gaslighting, a form of emotional abuse that causes someone to disbelieve their own reality. But it can also be as simple as the doctor not having the knowledge or tools to help you or they are constrained by policies, such as restrictions on prescribing opioids. Either way, being in this situation feels awful, like being abandoned by the person you thought would give you answers and support you so desperately need. How do you cope when this happens and is there a way to get better treatment? Maybe you’re looking for a diagnosis right now or need someone to take your pain seriously mid-symptom-flare. Read on to learn my story and some pro tips to help you get past the barriers so you can feel better.

Make Your Symptoms Visible

When you have a fever or swollen joints, it’s clear that something’s wrong, but RA is a trickster that often calms down just before you see the doctor. This leaves you with no proof but what you say—and of course, the same is true for pain. Medicine is very much an evidence-based field and although that’s often a good thing, it can be a barrier when there are no tests or mechanisms developed to measure symptoms like nausea, pain, and loss of energy. You’re the expert on what’s been going on with your body, so sharpening your communication skills can work to your advantage. Start by recording and tracking your symptoms.”

Learn more about how you can make your concerns about pain be heard in the doctor’s office on HealthCentral.

 

1 Comment

  1. Rick Phillips on February 10, 2022 at 10:19 pm

    I also say bring Sheryl to the appointment. No one will mess with her, I promise, no one. I have been on the other end of that cyclone.