Too Much Work and a Pile of Books
In the past few months, I’ve gotten really good at limiting how much I was doing. This was after I had to take time off for the second time in six months to cater to a body that didn’t like my stress levels. I’ve learned that when you have PTSD, there is a certain level…
Michael Kuvula & CreakyJoints Team Up to Spread Awareness About RA Through Fashion
This was one of the most fun interviews I’ve done in a while. Michael Kuluva premiered his 2018 Spring/Summer Tumbler & Tipsy collection at New York Fashion Week last Wednesday. And I got to interview him and get a preview of the collection! In a video! I also talk to Seth Ginsberg of CreakyJoints, the…
Breaking the Rules of Being a Chronic Illness Patient: Attitude, Ability and Advocacy
And… mic drop! In my new article for HealthCentral, I get the teensiest bit opinionated about how breaking the rules of being a “chronic illness patient” can actually be good for you. It includes profiles of some fantastic people who are breaking rules all over: “A diagnosis of chronic illness brings a host of new…
Emergency Preparedness, First Rheumie Appointments, and Gluten-Free Diets
Sometimes, my writing and the site production gets a little out of whack. And then flurries happen. To wit, here are my last three articles for HealthCentral: First, and the last kind of timely I ever want to be, a slideshow about what you need to do to be prepared for an emergency when you…
The Frantics and Other Fun at Fan Expo
”I don’t normally tell you what to do,” my friend Andrew said (wise man, for sure), “but Fan Expo may be a challenge for a person in a wheelchair.” He then proceeded to tell me about the massive crowds, the lineups, the crowds, and oh, yes, the crowds. He knows me well, knows I hate…
Ingénue Redux: A Concert with k.d. lang
I did not know that listening to k.d. lang sing Hallelujah was on my life list until last Thursday night at the Sony Centre in Toronto. I’m coming of of a very adventurous weekend. And it all started with a k.d. lang concert. To be honest, I have never been a huge k.d. lang fan….
Access/No Access: Ramps or Steps… Or Both?
This is the first in my new series of posts taking a look at bad solutions for accessibility, and hopefully the odd good one, as well. There are a couple of places in my extended neighbourhood that have created access using both a ramp and steps. One is at a local grocery store The other…
The Link Between Dental Health and Rheumatoid Arthritis
Did you know that the health of your teeth could be a factor in triggering RA? And that when you have RA, it affects your dental health? I look into a new study and what you can do to protect yourself in my new slideshow for RAHealthCentral: “Rheumatoid arthritis (RA) is an autoimmune disease that…
Facebook Live: The ADA and Applying for Disability
Did you miss it? In last week’s Facebook Live for RAHealthCentral, I talked about how the ADA can help you work longer when you have a chronic illness, and how to apply for disability. I had a bad cold. Meaning I am woman, hear me squeak!
How Meditation Can Help You Cope with Chronic Illness
To cope with chronic illness, you need a variety of tools. One of these tools is meditation. In my new article for HealthCentral, I look at how meditation can help you live better with chronic illness: “Living with chronic illness is stressful. These types of conditions are often unpredictable and require a lot of changes…
In Which My Chronic Illness Blog Gets Banned by Facebook
Did you know that sexuality and chronic illness is now against Facebook’s community standards? It is alarmingly easy to get blacklisted on social media channels. And once you’re put on the watch list, it is alarmingly difficult to get off it. I have been on social media for a very long time. It started with…
5 Ideas for Eating Well When You Don’t Have the Energy to Cook
Eating a nutritious balanced diet helps you to be healthier, especially when your chronic illness is flaring. But when your chronic illness is flaring, you don’t want to cook. It’s a vicious circle. In my new post for Mango Health, I share tips for how to eat well when you don’t feel like cooking: “Giving…