You’re Not Lazy: How Rheumatoid Arthritis Affects Motivation
Motivation is your get up and go, determination, the drive and interest in doing something. Whether it’s exercise, brushing your teeth, writing (or reading) a book, painting a picture or wall, making that call to your insurance company, or simply getting out of bed on a high-pain day. All of it takes motivation. One of…
How to Set (and Respect) Boundaries Live to Better with Chronic Illness
Boundaries can be an important part of mental health and when you have a chronic illness, they are an essential tool to maintain your physical health. But what are boundaries, exactly, and how can they help you create a better life with chronic illness and pain? In this post, I share some of my insights…
Vaccine rollout is excluding people with disabilities
I am not here to debate the COVID-19 vaccine — I desperately want it. As someone who takes immunosuppressant medication, have a disability, and receive attendant care, I am high risk for getting COVID-19 and to have a severe case. I qualify and am eligible for the vaccine. Yet somehow, I can’t get it. I channelled…
When apathy is deadlier than COVID-19
The pandemic has had a devastating impact on long-term care homes. In this article for the new publication Nature Aging, our team of four Canadian women who’ve created Disability Equity in Health looks at the factors leading to this situation: “Throughout the COVID-19 pandemic, many have disregarded worry since the virus “only kills old and…
The Best Thing You Can Say or Do When Someone’s in Pain
Living with chronic pain is incredibly difficult. It’s invisible, which means that in order to be understood, you have to tell people about it and that’s when you hit another barrier. How do you put into words something that is pure sensation and unlike anything the average person has experienced? But on the other side…
Is it OK to Dump Someone Because of Their Medical Condition? Why the New York Times Got It Wrong (and It’s Not What You Think)
“I just can’t handle it.” I’d bet the majority of people who have a chronic illness or disability have had that conversation when dating. That is, if you’re lucky. There are also the infinite number of times when you’re just ghosted — the person just disappears as if exorcised from your life. Earlier this week,…
Are intensive care triage protocols harming the disabled?
Are ICU triage protocols harming the disabled during the COVID-19 pandemic? This is a very important issue, one I’ve posted about before, as well as appeared on the TVO #onpoli podcast. And now, I’m taking it one step further through collaboration with the amazing Laurie Proulx and Emily Sirotich on an opinion piece for the BMJ. …
Deciding who lives and who dies – the #onpoli podcast
As someone who lives with multiple chronic illnesses and disability, news about triage protocols excluding people like me is both worrisome and infuriating. I recently appeared on the TV Ontario #onpoli podcast to talk about it. Listen to the episode on deciding who lives and who dies on TVO.
Denied: Disability and Life-Saving Treatment in the COVID-19 Pandemic
The COVID-19 pandemic is a scary time for all. When you have a disability, it’s downright terrifying to know that your life is a risk, not just from the virus, but also from the very real potential of being excluded from lifesaving measures. The devaluation of our lives that used to be covered with a…
Boundaries Start with U: Protecting Your Health with RA
It was my nap that taught me about boundaries and my role in maintaining them. Years ago, my rheumatoid arthritis (RA) progressed to the point that I needed a daily rest to manage fatigue and pain. And that’s when I banged hard up against other people’s preconceptions. “It must be wonderful to have a nap…
Chronic Illness Doesn’t Mean You Don’t Contribute
I can’t work, so I feel like a deadweight in my marriage. We used to do active things together and now we can’t. I worry that it’ll end our relationship. I see these comments all the time as I talk to others in the chronic illness community. When you can no longer do everything you…
Chronic Illness Brain Fog, Part Two: What You Can Do To Cope
Updated April 19, 2021 Brainfog. It’s part of many people experience when they have a chronic illness. Yesterday, I discussed what brain fog is and what causes it. Today, let’s talk about how to cope. When you have brain fog, there are number of things you can do to reduce the density of the fog,…