Coming Far, Going Further
A few weeks ago, The Boy and I decided to take a walk down to the lake. This is not earth shattering news — we do it on a fairly regular basis, what with my Sugar Beach obsession and all. What’s new about this story is that once we got there, I suggested doing something…
Still Looming
I’ve written before about living Under the Shoe, that pervasive sensation that any minute now, the other shoe will drop and everything you have will turn to ash. I’ve written before about how living in the moment and not planning ahead was an unlisted side effects of finding a medication that worked in getting my…
Watershed
Sometimes, change happens so gradually that you’re not aware of it until after it’s well underway. And sometimes, you can pinpoint the exact moment your life changed, naeeowing the point down so precisely that the watershed between Before and After is a matter of minutes. On January 7, 2005 at 3:35 PM, I got my…
Real RA: Side Effects of the Miracle
Yesterday, as I moved down the street with the first vague sense of woozy pressure building in my sinuses, it came to me that the next post in my Real RA series should be a look at the cost of the miracle. And by the miracle, I mean Humira and everything good and beneficial it…
The Girl in the Bubble
48 hours after our last weekend together, The Boy came down with the plague. Okay, so maybe it wasn’t bubonic, but it certainly was a particularly pestilential case of the flu. The Boy rarely gets sick – he’s one of those annoying people with an iron constitution – and when he does get sick, it’s…
Inside the Miracle
Last weekend, a user on MyRACentral named Laurie posted about the change in her life brought about by Humira. Less than a year ago, two separate doctors told her that she’d never be strong enough to do the physical things she loved, would never kayak or hike again. So she sold her kayak and I…
I’m Healthy/No I’m Not
My Writing Buddy has done it again. The woman keeps making me think and I intend to speak sternly to her about it one of these days. Laurie’s latest post In Translation is about coming back to the oncology centre for a monthly treatment and being asked how she feels in this question in particular…
Nothing Fancy
A friend sent me an e-mail with an invitation. He has the possibility of going to a gala and since it’s for disability related thing, asked if I wanted to come along. This is a transcription of the next few seconds in my brain: Absolutely! I don’t have it anything in my wardrobe that is…
What If
It’s been hard to ignore, but I’ve done my best, mentally erasing the implications of the two marks just below my left knee, the tiny ends of the suture waving back at me with a decidedly insouciant air. They’re right there, couldn’t be more in the my field of vision if they tried and every…
Having Plans
A couple of weeks ago, I watched a documentary called 65_RedRoses about a young woman with cystic fibrosis who was waiting for a double lung transplant. It’s a nailbiter and you need Kleenex and in the end, when you see her on the Dragon boat team of people who’ve had transplants, paddling furiously, you are…
Thanks Giving
It has ripples, this thing. This exhibit. This fulfilling of a dream I thought was just a dream, something to wish for, think about, but never realize. A dream, a fancy, not an achievable goal. And besides the mindboggle of holycrapIhaveanexhibit!, there’s something more, a deeper awe. Because as Dawn said when I told her…
Still, After All This Time
About a month ago, I wrote about living back from the edge and within that, about the slow coming back granted me by Enbrel and Humira. Well, in the beginning, it wasn’t slow. In the beginning, there was something new every day that I could do again, every day I laughed with the rediscovery of…
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