#RABlog Week Day 1: Starting over
This week, I’ll be participating in RABlog Week, posting on particular prompts that were decided by a community survey. Learn more about RABlog Week and how you can participate. You can also follow the #RABlog Week hashtag on Twitter. This year is my 50thanniversary of living with RA. Well, technically juvenile idiopathic arthritis, but my…
5 Things I’ve Learned from RA
#RAblog is a seven day event from September 21-27, 2015. The brainchild of Rick Phillips, the goal of this week is to raise awareness about rheumatoid arthritis and build community. Up on over to the RADiabetes site to learn more about #RABlogWeek and find links to other participants.For Day 4 of #RABlog Week, we were…
On Decades, Miracles and Living the Dream
Image credit: dvarg Today is the 10thanniversary of my first injection of a biologic. At 3:35 PM, to be exact. Today is the 10th anniversary of me getting a second chance, of being given the gift of getting back my life. Ten years ago, I thought I’d celebrated my last Christmas. I had nothing…
Still Looming
I’ve written before about living Under the Shoe, that pervasive sensation that any minute now, the other shoe will drop and everything you have will turn to ash. I’ve written before about how living in the moment and not planning ahead was an unlisted side effects of finding a medication that worked in getting my…
A Smack Upside the Head
“How do you know when you’re stressed?” Marianna asked this in her most recent giveaway (g’ahead, click and enter, it’s open until May 19). It turns out that my answer is I don’t. It’s been pretty obvious — even to me — that things have been very busy for a long time around here. My…
Leading with Joy
“You must be very angry.” This was the (rather leading) question of one of the journalists I spoke during my brief tenure of being a spokesperson for the Health Council of Canada. We’d been discussing the eight months I waited for funding approval for Enbrel, of how the RA ate my life and made me…
Of Two Minds
Jeff Probst has a new show called Live for the Moment, which according to his blog post on the Entertainment Weekly website “tells the story of someone who has experienced a life-changing event that inspired them to change how they live their life”. The show sends “them on a series of adventures which offer major…
You Never Know
“I can’t do a New Year’s post this year, it’ll sound like I’m bragging.” This is what I said earlier this week, heavily influenced by that Danish-Canadian thing about not tooting your own horn overmuch (and perhaps a little by the fear that if I say something out loud, it’ll jinx it). At New Year’s…
Living back from the Edge
When you’ve been to the brink, to almost-death, to you can see it from here without binoculars, it changes you. In the beginning, it is overwhelming. The world is overwhelming. In the beginning, I was regularly brought to the brink of tears by a perfect pepper, by the sun shining through a leaf, constantly reminded…