February 2021 Chronic Journeys with My Guest Daniel P. Malito
On the latest episode of Chronic Journeys, I talk to Daniel P. Malito about growing up with juvenile arthritis, stretch marks and opioids! Get Dan’s book So Young: A Life Lived with Rheumatoid Arthritis. This post may contain affiliate links. If you click on the link and make a purchase, I may receive a small…
Farber’s Disease: Could Your Child’s Juvenile Idiopathic Arthritis Be Misdiagnosed?
Joint inflammation or contractures. Nodules (small lumps under the skin or in other tissues). A weakened or hoarse voice. Children with these symptoms may have been diagnosed with juvenile idiopathic arthritis (JIA) or other types of juvenile arthritis. But do they actually have JIA or do they have Farber’s disease? An equine digression When you…
Becoming Bionic: A Story from the Dark Ages of Rheumatology
Updated May 19, 2020 When I was 16, I had both my hips replaced. When I talk about it, I usually focus on the way they liberated me from more than two years of lying in a hospital bed. They enabled me to sit in a power wheelchair and to go home. I don’t talk about…
Like Me: Finding My RA Community and Why It Matters
Updated November 12, 2022. Being different is both external and internal. Being the only person who looks a certain way set you apart in a group, designates you as Other. Even when the members of the group are your friends, there is something that makes you feel set apart. Finding your community, the people who…