February 2021 Chronic Journeys with My Guest Daniel P. Malito
On the latest episode of Chronic Journeys, I talk to Daniel P. Malito about growing up with juvenile arthritis, stretch marks and opioids! Get Dan’s book So Young: A Life Lived with Rheumatoid Arthritis. This post may contain affiliate links. If you click on the link and make a purchase, I may receive a small…
The Healing Touch: How My Mother Took Away My Pain When Nothing Else Could
“That pain you had… For a mother to see a child with that kind of pain, is so terrible.” — My mom, Birthe Andersen I have had juvenile arthritis since I was four years old, which means this condition and I recently celebrated (?) 50 years together. For most of that time, there were no…
Becoming Bionic: A Story from the Dark Ages of Rheumatology
Updated May 19, 2020 When I was 16, I had both my hips replaced. When I talk about it, I usually focus on the way they liberated me from more than two years of lying in a hospital bed. They enabled me to sit in a power wheelchair and to go home. I don’t talk about…
Like Me: Finding My RA Community and Why It Matters
Updated November 12, 2022. Being different is both external and internal. Being the only person who looks a certain way set you apart in a group, designates you as Other. Even when the members of the group are your friends, there is something that makes you feel set apart. Finding your community, the people who…
Going Deep
Updated June 21, 2020 One of the favourite books of my childhood was Heidi, the story of a little girl who lived on the Alm (Alp) with her grandfather (first published in 1880, more here). I haven’t read the book since I was 12 or 13 and didn’t remember much more then that. In a…