Leading with Joy
“You must be very angry.” This was the (rather leading) question of one of the journalists I spoke during my brief tenure of being a spokesperson for the Health Council of Canada. We’d been discussing the eight months I waited for funding approval for Enbrel, of how the RA ate my life and made me…
Christmas Shenanigans
Coming up for air after a weekend of immersion in the Christmas spirit is an oddly disconcerting experience. It’s back to work and I’d much rather stay within the warmth and joy of what in Danish is called Julehygge. In other words, hygge specific to Jul (Christmas). It’s a good place to be. The Boy…
A Very Glædelig Jul
And a pronounciation guide on how to say Glædelig Jul (aka Merry Christmas)! Have a wonderful everything!
The Girl in the Bubble
48 hours after our last weekend together, The Boy came down with the plague. Okay, so maybe it wasn’t bubonic, but it certainly was a particularly pestilential case of the flu. The Boy rarely gets sick – he’s one of those annoying people with an iron constitution – and when he does get sick, it’s…
Talking About the Money
“You assume that it’s all covered.” It was at the tail end of my interview with the CBC – no, not shameless name dropping, actually relevant to this post. (shameless self-promotional links to two of last week’s interviews at the end of this post). I was chatting with the reporter and cameraman as the equipment…
Everything – A Re-Post
On Monday, in the Health Council of Canada video I talked about the consequences of not being able to get the medication you need because of cost. Yesterday, I posted my guest blog for the Help Council of Canada about the cost of chronic illness. Today, I’d like to shares something I posted back in…
The Cost of Chronic Illness
This week, I’m one of the spokespeople for the Health Council of Canada in relation to the release of their latest report on how Canadians with chronic diseases rate their health care system. Today, my guest blog appears on their blog site. I wrote about the cost of chronic illness: When we talk about the…
In Which I Become a Spokesperson
Today, the Health Council of Canada releases their latest report called “How Do Sicker Canadians with Chronic Disease Rate the Health Care System?” This is not the first report they have released – their mission is to “[t]o report on the renewal of Canada’s health system, focusing on best practices and innovation.” I love this…
Anger and Shame
As you’ve no doubt noticed, I’ve been pretty angry lately. It happens when I’m very tuned into political issues. And it happens a lot when I’m tuned into political issues that relate to vulnerable populations (usually double levels of injustice). Lately, I’ve been blogging a lot about disability issues and well… This is one of…
International Day of People with Disabilities
Saturday was the International Day of People with Disabilities. This is a day proclaimed by the UN and this year, the theme was “together for a better world for all:including persons with disabilities in development.” this became particularly amusing (but not in a good way) when you consider everything that’s happened in our fair city…