The Rollercoaster: A Guestpost by Kim P. Miller
Today is really special for me. I met Kim P Miller last year when I interviewed her about her book Living with Juvenile Arthritis: A Parent’s Guide. We share a passion for raising awareness about juvenile arthritis, coming at it from different perspectives. I as an adult with JA, she is a parent of two…
Choice & Control: Guestpost and Giveaway
Greetings from the blog tour trail! I liked it so much the first time that I went on a virtual tour to celebrate the holidays. Several months ago, I met Kim P. Miller, author of Living with Juvenile Arthritis: A Parent’s Guide.. We come at life with inflammatory arthritis from opposite directions. I’ve lived with…
Like Snow: 13 New Names for Different Types of Pain
Updated November 21, 2021 Most people have an only occasional experience with pain and as the language of a culture is shaped by the majority experience, our world lacks descriptors of pain beyond the basic – burning, stabbing and not much else. Those of us who live with chronic pain know that it is a multifaceted creature. Legend…
Like Me: Finding My RA Community and Why It Matters
Updated November 12, 2022. Being different is both external and internal. Being the only person who looks a certain way set you apart in a group, designates you as Other. Even when the members of the group are your friends, there is something that makes you feel set apart. Finding your community, the people who…
Effortless: What Walking Looks Like to Someone Who Can’t Walk
I was 14 the last time I walked on my own steam and I did so with crutches and what felt like knives slicing through my joints at every step. Years of untreated juvenile arthritis had ravaged my body. Thirty years later, walking no longer makes sense to me – I have no muscle memory…
Going Deep
Updated June 21, 2020 One of the favourite books of my childhood was Heidi, the story of a little girl who lived on the Alm (Alp) with her grandfather (first published in 1880, more here). I haven’t read the book since I was 12 or 13 and didn’t remember much more then that. In a…
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