Managing RA (or Any Chronic Illness) Is a Full-Time Job
No one ever tells you just how much work it is to have a chronic illness. Just how many roles and tasks does it include? I tell all in my new Made with RA column on HealthCentral: “I am exhausted. My doctors would tell me this is due to the stress of living with a…
Is it OK to Dump Someone Because of Their Medical Condition? Why the New York Times Got It Wrong (and It’s Not What You Think)
“I just can’t handle it.” I’d bet the majority of people who have a chronic illness or disability have had that conversation when dating. That is, if you’re lucky. There are also the infinite number of times when you’re just ghosted — the person just disappears as if exorcised from your life. Earlier this week,…
Are intensive care triage protocols harming the disabled?
Are ICU triage protocols harming the disabled during the COVID-19 pandemic? This is a very important issue, one I’ve posted about before, as well as appeared on the TVO #onpoli podcast. And now, I’m taking it one step further through collaboration with the amazing Laurie Proulx and Emily Sirotich on an opinion piece for the BMJ. …
Deciding who lives and who dies – the #onpoli podcast
As someone who lives with multiple chronic illnesses and disability, news about triage protocols excluding people like me is both worrisome and infuriating. I recently appeared on the TV Ontario #onpoli podcast to talk about it. Listen to the episode on deciding who lives and who dies on TVO.
RA and COVID-19: Can We Go Back to Normal?
In the past week, some countries have started to relax COVID-19 restrictions and there is increasing talk about loosening things up. They call it deconfinement, which sounds oddly benign, like a Victorian lady starting to visit acquaintances for tea again after having produced the spare to the heir. But it’s not benign. I have rheumatoid…
Denied: Disability and Life-Saving Treatment in the COVID-19 Pandemic
The COVID-19 pandemic is a scary time for all. When you have a disability, it’s downright terrifying to know that your life is a risk, not just from the virus, but also from the very real potential of being excluded from lifesaving measures. The devaluation of our lives that used to be covered with a…
Thoughts on Guilt and Rheumatoid Arthritis
Guilt and rheumatoid arthritis (RA) go hand-in-hand. It goes something like this: You made plans. Sometimes big plans, sometimes small. Then you wake up to a day when your RA has decided to be extra — extra painful, extra flare-y, extra getting in the way of your life — and there’s only one thing to…
#3Things FAQ: Small Steps to Build a Better Life with Chronic Illness
You may have seen me talk about #3Things on various social media channels. In case you don’t know what I mean, here’s an FAQ. What, exactly, is #3Things? #3Things is a gentle way to build a better life with chronic illness. I wanted to help people with chronic illness accomplish goals in a positive way that respects…
When Bodies Break: New Book from the Chronic Illness Community
I am proud to bursting of being a contributor to the exciting new book, When Bodies Break: How we survive and thrive with illness and disability. In it, thirty-two inspiring and resilient chronic illness warriors share their stories of struggle, strength and survival. When Bodies Break is the brainchild of Cam B. Auxer, the woman…
Access/No Access: The Quest for an Accessible Hotel Room
I had to be out of my apartment for week while my landlord installed new flooring to replace the one that had been destroyed in a flood. But first, I decided to check out a few accessible rooms in hotels near my neighbourhood to see which would best fit my needs. Starting with a surprise…
A Streetcar Named Freedom
Ask any person with a disability about the main challenges to living their life and almost all will talk about transportation (and, of course, housing). In Toronto, we have WheelTrans, the parallel transit system for people with disabilities, some accessible regular buses, some accessible subway stations, and now, new and accessible street cars. I have…
Masking RA: How to Stop Pretending We’re Fine
Do you pretend to be better than you are? Do you hide your pain, your fatigue, maybe you illness itself? In my new article for HealthCentral, I write about the damage pretending with do to us and our relationships and share tips for taking off the mask: “We all do it — pretend that everything…