5 Tips for Coping When Your Illness Takes Over
If there’s one thing I’ve learned over my five decades with autoimmune arthritis, it’s that it ebbs and flows. There are times when everything’s as great as it can be, others when you enter the abyss, and everything in between. Having a chronic illness is much like being on a roller coaster, except slower and…
5 Meditation Tips for Beginners
Meditation is a great coping tool when you live with RA and other types of chronic illness, but how do you get into the habit? I tried meditating for 30 days and shared some tips in my latest articile for HealthCentral: “When you’re looking for ways to cope with rheumatoid arthritis (RA), sooner or later,…
The Healing Touch: How My Mother Took Away My Pain When Nothing Else Could
“That pain you had… For a mother to see a child with that kind of pain, is so terrible.” — My mom, Birthe Andersen I have had juvenile arthritis since I was four years old, which means this condition and I recently celebrated (?) 50 years together. For most of that time, there were no…
When Strong Gets in the Way
This post is written for the Facebook Live conversation between myself and Kirsten Schultz on how to stop being so damn strong. You can see Kirsten’s post here. I am very good at lying to myself. So good, in fact, that most of the time, I have no idea that I’m pulling the wool over…
My Favourite Books That Helped Me Live Better with Chronic Illness
This post may contain affiliate links. I have read voraciously for pleasure since I was a child. Somewhere along the way, I discovered that books can also educate, support, and help you figure out how to live in this world. This can be extra helpful when you live with a chronic illness and are flailing…
Lisa Sniderman: Being a Light in the Darkness for People with Chronic Illness
Lisa Sniderman`s book A Light in the Darkness: Transcending Chronic Illness through the Power of Art and Attitude is a memoir of her life as an artist with dermatomyositis, a rare autoimmune disease. Using her artist persona, Aoede, the Muse of Song in Greek mythology, she greeted songs informed, winning multiple awards, until sidelined by…
#3Things FAQ: Small Steps to Build a Better Life with Chronic Illness
You may have seen me talk about #3Things on various social media channels. In case you don’t know what I mean, here’s an FAQ. What, exactly, is #3Things? #3Things is a gentle way to build a better life with chronic illness. I wanted to help people with chronic illness accomplish goals in a positive way that respects…
Strategies for Surviving Celebrations (and Daily Life) with Chronic Illness
Updated November 20, 2021 We all have energy-sucking events and tasks in our lives. They can range from doing routine household chores to planning a big celebration, such as a family party or a wedding. When you have a chronic illness, approaching any of them can feel overwhelming. Where do you start? Will you have…
4 Ways to Use Respect and Dignity in Caregiving for Chronic Illness
When you have a chronic illness — or know someone who does — help can be part of your relationship. More commonly, the word caregiving is used when there is an element of caring for someone who has physical limitations, such as chronic illness. Giving and receiving care is much more than just the physical act…
4 Stress Busters for Writers with a Chronic Illness
Updated September 28, 2021 There are distinct benefits to working for yourself and even more benefits to having an office in your home. The commute is ideal, the dress code very relaxed, and you can set your own hours. This is fantastic when you have a chronic illness. There are also drawbacks — you’re the boss…
What Okinawa’s 80% and Mary Kay Taught Me about Writing with Chronic Illness
Updated September 28, 2021 I ran out of spoons around the middle of June. Then I spent the next six weeks teetering on the line between having just a few and being deep in energy overdraft, while mentally (and repeatedly) chanting just hold on until August 1 and not quite understanding why I was flaring…
The Sanest Thing I Ever Did
Updated September 26, 2024 Sometimes, there’s nothing for it. Sometimes, you try and try and try and then you try some more, but you can’t get past where you are. Sometimes, the struggle takes on a life of its own, colouring everything else around you, making it impossible to have a moment that is free…