I Have Rheumatoid Arthritis, But Please Don’t Call Me a Patient
I have been involved in chronic illness and advocacy for a long time, but the terms ‘patient,’ ‘patient advocate,; or ‘patient expert’ has never sat well with me. In my new article for CreakyJoints Canada, I talk about why: “I dance every day, but not to music. As someone with rheumatoid arthritis (RA), I spend…
Managing RA Pain in a Post-Opioid World
Pain meds aren’t always available when you need them. In my new olumn for HealthCentral, I share relief strategies can help get you through a rough patch: “LIKE IT OR not (and really, who would?) to have rheumatoid arthritis (RA) is to know pain—even people in remission may have occasional flares or breakthrough pain. For me…
How to Talk to Your Doctor About Sex and RA
Rheumatologists don’t always bring up the topic of how RA affects sex, so you may have to. WHich can seem daunting. In my new column for HealthCentral, I share tips for starting a conversation with your doctor about how RA affects your sex life: “WHEN YOU HAVE rheumatoid arthritis (RA) it affects all aspects of…
Journaling With Chronic Illness: My Favourite Supplies
Journaling can be a wonderful way to process your feelings around chronic illness, as well as a creative outlet that doesn’t need you to use a lot of energy or movement. Win-win, right? At its core, journaling is about thoughts, a pen and a notebook — or your phone or computer, if handwriting is difficult….
How Journaling Can Help You Live Better with Chronic Illness and Pain
Did you know journaling can be an important tool to add to your bag of chronic illness and pain coping tools? It’s been shown to help people cope with pain, PTSD, depression, and even have a beneficial effect on your immune system. This is the first in a series on journaling and chronic illness and…
Made with RA: Having RA Means You Are Resilient
When a flare gets you down, you have to get back up. In my new column for HealthCentral, I remind you that you already know how to keep going (and share tips and how-to in case you need a refresher): “RHEUMATOID ARTHRITIS (RA) can stop you in your tracks, taking over every single part of your…
Give Yourself Credit for Everything You Do With RA
A little self-love goes a long way in seeing your accomplishments for what they are: enough. How to get there? I share tips in my latest column for HealthCentral: “WHEN LOOKING BACK at your day, your week, and maybe even your year, does a list of all the things you couldn’t or didn’t do roll in…
5 Platitudes That Don’t Help Me Live Better With RA
When people don’t know what to say about your rheumatoid arthritis, they often rely on old adages or platitudes. The problem is, none of these actually help you feel supported and they are hardly ever useful. In this column for HealthCentral, I pick apart five platitudes that don’t help and suggest alternatives: “EVEN THE MOST introverted…
How to Actually Pace Yourself With RA
On the couch, flaring because you overdid it AGAIN? Yup, been there. In this column for HealthCentral, I break down how to keep yourself from overdoing it over and over again: ““Pace yourself.” This is the magic solution to all my woes of trying to live my life while managing rheumatoid arthritis (RA). At least, it’s…
February 2021 Chronic Journeys with My Guest Daniel P. Malito
On the latest episode of Chronic Journeys, I talk to Daniel P. Malito about growing up with juvenile arthritis, stretch marks and opioids! Get Dan’s book So Young: A Life Lived with Rheumatoid Arthritis. This post may contain affiliate links. If you click on the link and make a purchase, I may receive a small…
Emergency Preparedness with a Chronic Illness or Disability
Updated April 20, 2024 Big and scary emergencies are thankfully rare occurrences, but when they happen, those of us who live with chronic illness and disability may have challenges that others don’t experience. Part of your emergency plan will be the same as your healthy and able-bodied neighbours, but you will also need to make…
The Best Thing You Can Say or Do When Someone’s in Pain
Living with chronic pain is incredibly difficult. It’s invisible, which means that in order to be understood, you have to tell people about it and that’s when you hit another barrier. How do you put into words something that is pure sensation and unlike anything the average person has experienced? But on the other side…