Is it OK to Dump Someone Because of Their Medical Condition? Why the New York Times Got It Wrong (and It’s Not What You Think)
“I just can’t handle it.” I’d bet the majority of people who have a chronic illness or disability have had that conversation when dating. That is, if you’re lucky. There are also the infinite number of times when you’re just ghosted — the person just disappears as if exorcised from your life. Earlier this week,…
Why Does It Take So Long To Get A Diagnosis Of RA?
One of the biggest struggles to effectively treat rheumatoid arthritis (RA) is the delay in diagnosis. In the very recent past, just 20 years ago, the time from the appearance of first symptoms to diagnosis range from a few months to more than 10 years. Thankfully, that has improved more, although the average is still…
Two Kinds of RA Pain and How to Cope
Pain is often one of the first symptoms of rheumatoid arthritis (RA) and may continue to play a leading role in your life with this condition. When you have RA, there are two general causes of pain: one is active RA inflammation and the other RA damage. I’ll take a look at both, as well…
When RA Hits Your Jaw: The Facts and Tips to Cope
Did you know that headaches, toothaches, and pain around the neck and shoulders could mean that rheumatoid arthritis (RA) is affecting your jaw? For some of you reading this, this could be the first time you heard that RA can affect your jaw. Let’s cover that first — yes, it can, just like all the…
RA and COVID-19: Can We Go Back to Normal?
In the past week, some countries have started to relax COVID-19 restrictions and there is increasing talk about loosening things up. They call it deconfinement, which sounds oddly benign, like a Victorian lady starting to visit acquaintances for tea again after having produced the spare to the heir. But it’s not benign. I have rheumatoid…
COVID-19 and RA: What to Pack in Your Hospital Go-Bag
Living in the middle of a pandemic while being high risk is the most scared many of us have ever been. When you have rheumatoid arthritis (RA) and are taking an immunosuppressant medication, there is a double whammy of risk. We have to consider what might happen if we need to go to the hospital…
Answered: Your Questions About Chronic Illness and COVID-19
Updated March 17, 2020 If you are a member of a vulnerable population, what you need to do and what you need to worry about in relation coronavirus and COVID-19 (the illness you get from coronavirus) may be entirely different than what’s general available. Finding the answers isn’t always easy. I asked my readers to…
Boundaries Start with U: Protecting Your Health with RA
It was my nap that taught me about boundaries and my role in maintaining them. Years ago, my rheumatoid arthritis (RA) progressed to the point that I needed a daily rest to manage fatigue and pain. And that’s when I banged hard up against other people’s preconceptions. “It must be wonderful to have a nap…
Chronic Illness Doesn’t Mean You Don’t Contribute
I can’t work, so I feel like a deadweight in my marriage. We used to do active things together and now we can’t. I worry that it’ll end our relationship. I see these comments all the time as I talk to others in the chronic illness community. When you can no longer do everything you…
9 Quotes That Inspire Me When the Struggle Gets Too Real
We all have when you wake up to discover that everything has chosen this exact moment to fall apart: your chronic illness has flared, your pain is out of control, the cat puked in your shoes, and brain fog is making it impossible to think. For instance. And sometimes, we have several days like that…
Thoughts on Guilt and Rheumatoid Arthritis
Guilt and rheumatoid arthritis (RA) go hand-in-hand. It goes something like this: You made plans. Sometimes big plans, sometimes small. Then you wake up to a day when your RA has decided to be extra — extra painful, extra flare-y, extra getting in the way of your life — and there’s only one thing to…
I Tried CBD Oil for Chronic Illness and Pain. This is What Happened
As the war on opioids continues to restrict prescription pain medication, those of us who live with chronic pain are looking for alternatives that will help us to continue living our lives. CBD oil is one option. It has had a profound impact on the pain caused by my rheumatoid arthritis and fibromyalgia and surprisingly,…