7 Ways to Build a Chronic Illness Emergency Fund
Having a chronic illness is expensive. Struggling financially is so common, you might even call it normal. Those of us who live with chronic illness have the usual expenses, but your health condition cranks up the strain on the budget even more. Having a cushion of savings can make all the difference. Whether it’s paying…
Do These 3 Things to Enjoy the Holidays with Chronic Illness
Updated November 20, 2021 There are just a few days left before the Big Day and it’s crunch time. Crunch and well, panic. When you have a chronic illness and limited energy and ability, it’s even more of a challenge. Everything seems overwhelming, the lists keep growing instead of shrinking, and the specter of…
Chronic Illness Brain Fog, Part Two: What You Can Do To Cope
Updated April 19, 2021 Brainfog. It’s part of many people experience when they have a chronic illness. Yesterday, I discussed what brain fog is and what causes it. Today, let’s talk about how to cope. When you have brain fog, there are number of things you can do to reduce the density of the fog,…
Chronic Illness Brain Fog, Part One: What It Is
Updated April 19, 2021 Many people with chronic illness also experience the phenomenon colloquially known as brain fog. This includes symptoms related to problems with focusing and concentrating, memory problems, and basically your mind feeling less nimble than it used to. It can be a really big problem, but it doesn’t receive a lot of…
Arthritis at Work: Two New Resources to Keep You Working
Over 80 percent of people with arthritis have trouble working because of their health and felt work had a negative impact on their health. These findings from a Canadian Arthritis Patient Alliance (CAPA) study formed the foundation for two organizations to create some fantastic arthritis and work resources that can help you keep working without…
Sisters, Friends, and Sister-Friends
I used to think that friendship was built in person. The internet taught me differently when it gifted me my tribe of a chronic illness community. In my tribe the, the wise woman is Cathy Kramer. Cathy and I met ten or so years ago, when she started writing for HealthCentral, and we kept being…
The Healing Touch: How My Mother Took Away My Pain When Nothing Else Could
“That pain you had… For a mother to see a child with that kind of pain, is so terrible.” — My mom, Birthe Andersen I have had juvenile arthritis since I was four years old, which means this condition and I recently celebrated (?) 50 years together. For most of that time, there were no…
When Strong Gets in the Way
This post is written for the Facebook Live conversation between myself and Kirsten Schultz on how to stop being so damn strong. You can see Kirsten’s post here. I am very good at lying to myself. So good, in fact, that most of the time, I have no idea that I’m pulling the wool over…
RA vs OA: This Ain’t Your Grandfather’s Arthritis
Updated August 4, 2020 Ask anyone with rheumatoid arthritis (RA) to tell you about their biggest frustration and chances are they’ll mention the misperception that it is similar to osteoarthritis (OA). You know the moment — you explain that you have RA and they say, “oh yes, I know exactly what you mean. My knee…
What We Need From Others When We’re in Pain
Image description: rear view of two women sitting on a bench by a harbour. One woman is resting her head on the other’s shoulder. Pain is invisible. Which makes it hard to explain, and difficult for others to understand. I talked to the chronic pain community on Twitter and Facebook and they shared what they…
How to Train Your Rheumatologist in Six Easy Steps
Congratulations on getting yourself a brand-new rheumatologist! Rheumatologists — or rheumies, as they are affectionately known in the community — can add so much value to living with any kind of arthritis. Like any other new relationship, though, you have to get used to each other, and your rheumatologist has to come to understand how…
My Favourite Books That Helped Me Live Better with Chronic Illness
This post may contain affiliate links. I have read voraciously for pleasure since I was a child. Somewhere along the way, I discovered that books can also educate, support, and help you figure out how to live in this world. This can be extra helpful when you live with a chronic illness and are flailing…